Making the case for a national eating disorders strategy

I currently work as an NHS Non-Executive Director and previously ran the NHS Benchmarking Network (NHSBN) for over 20 years. My interest in eating disorders goes back to this period, when I used to report on the state of the nation’s healthcare with NHSBN.

Eating disorders are serious illnesses, with the highest mortality rate of any psychiatric disorder. However, each year only around 35,000 people can access NHS care, compared to a national prevalence of 3.5 million people, making this one of the largest treatment gaps in UK healthcare.

Australia, New Zealand, and Sweden have all developed national plans for eating disorders. Through my Fellowship, I was able to meet with government leads, service providers, and service user and carer communities to learn from the process of developing these strategies, and how each country was mobilising to deliver tangible change.

In Australia, I saw that positive change was tangible. Visiting the world’s largest e-clinic for eating disorders, I saw the value of building effective clinical networks across both general and specialist care.

Like Australia, New Zealand has also given strong political priority to eating disorders and are also leading the way in terms of supporting better outcomes for minority populations, including Māori, Pasifika, and Asian communities.

Sweden had a fully functioning care model in place that was operating at a scale much larger than we see in the UK. I saw first-hand how day care and digital care – both gaps in the UK – were enabling effective treatments that made a real difference to people’s access to services and outcomes.

The people and organisations I met in each country welcomed the opportunity to share learning, and we continue to keep in touch, sharing ideas, progress, and experiences. The Churchill Fellowship really opened doors for me. People were happy to meet, listen, and share approaches, and the experience gave me a strong sense of responsibility to produce a considered and impactful report.

Since returning, I’ve been working hard to keep momentum behind the case for change in the UK, and there is now real progress. Over the last year I have been sharing my findings and shown the improvements that could be made in the UK through briefings with the Health Minister, the Eating Disorders APPG, national policy teams, providers, and service user and carer organisations.

I always try to take an optimistic position that positive change is possible, even if the current pressures on public finances mean that, in the short term, this may involve redeploying existing resources and optimising the support already available for people affected by eating disorders. My Fellowship showed the value of nationally coordinated approaches, and gave me practical examples of how services, networks, and resources can be used more effectively while making the case for longer-term change.

I’m hopeful there will be positive news on this front later this year as the upcoming NHS Modern Service Framework for Severe Mental Illness will now include standards and guidance on supporting eating disorders, a major development influenced by my Churchill Fellowship research.